Lilypie Premature Baby tickers

Lilypie Premature Baby tickers

Friday, December 28, 2012

23 Days home and counting.....

December 28, 2012

5 months 1 week and 5 days old





We have been home longer this time than any other discharge 3 weeks and 2 days.  Christmas has came and gone and we got to spend it here in the comfort of home.  Last Friday I got a little adventurous and took Ameir to Walmart (I rarely shop here but it was right off the highway) on our way home from U of M.  It was almost Christmas and I hadn't gotten either of my kids anything for Christmas yet.  Ameir got his hearing aids and seen his cardiologist.  His cardiologist told us he is getting too fat!!  Ameir now weighs 14 pounds and 6 ounces, he is 23.5 inches long.  Funny that his record has a diagnosis of failure to thrive.  Also his PDA is most likely closed all the way and the murmur from his VSD is very faint meaning it will most likely close completely on its own.  Great news is that we get to come back in 3 months he is doing so good. 



Since being home Ameir has gotten a bigger personality.  He seems to be much more alert and pay attention to things.  He loves his toys and his mobile.  He looks around when the mobile stops like he is sad that it stopped.  He sleeps really good here at home.  We are having a few minor nursing issues, some days I am alone and others I have 24 hours of nursing...I hate it this way because I want to be able to do everything in the day when he is awake and not have to catch up on sleep because I won't have a night nurse. 
























We made it to the ZOO!!!

December 7, 2012

On December 5, 2012 after 77 long days in the hospital Ameir is finally home where he belongs.  Kind of a bitter sweet moment.  I have been by his side 24 hours per day since he was admitted and although I did 95% of his care leaving the "back-up" of 24 hour nursing and monitors is scary.  We have been home now for 2 days.  We had a very uneventful car ride home.  Respiratory from our vent company met us here and also the supervisor from the nursing agency to do Ameir's intake assessment.  We had our first night -Wednesday- home with a 3rd shift nurse and Ameir was up a little more than usual.  Probably because of the difference in smell and place.  He spent the next afternoon catching up on missed sleep.  We had a day nurse Thursday and Friday.  After the nurse leaves tonight at 8pm I am on my own for 24 hours.  Then we have 24 hours of nursing.  Eventually we will have all night nursing with day shift covered on appointment days.