August 9, 2012
24 days old
The countdown begins.....in less than 24 hours Ameir will be released home, and I will be on my own. No nurses to double check that Ameir's feeding tube is placed in the correct spot, no nurses to take his blood pressure or temperature every 3 hours, nobody asking how many times he peed and pooped today, nothing but a weekly home nurse visit for vitals.
I have been an emotional wreck all day. 21 weeks ago I was told that my baby would not survive another 4 weeks of pregnancy and here I am packing up little man's hospital room into our home bags. With everything going on I have forgotten something semi-important, I didn't pick out a coming home outfit....I have a lot of clothes up here with us, but totally let picking one special one for HOME slip my mind. All along I had plans on going home with Ameir and it seems reality has now set in.
Today the pulmonologist asked me what were my goals for Ameir and what do I want....I told him that in 5 years I want to be signing Ameir up for Kindergarten and I mean that. We had tons of doctors come in today to give us the all clear. The discharge planner made a return visit to let me know which company will be supplying our DME needs and home nursing visits, not to be confused with home health care...I guess the hospital social worker signs us up for that and I have not seen her at all this week.
Ameir passed his car seat test yesterday.
Tomorrow after my infant CPR class we will be homeward bound!!! I will try and update again tomorrow night, I changed the camera battery because I know we will have tons of pictures of tomorrow.
Amy i'm so excited for you!!! I just knew our prayers would be answered for little Ameir and im so glad you kept your faith even when times were rough. Continue to trust that God will be right there by your side and everything will be okay. May his guardian angels remain near and guide your every move. Continuing to keep your whole family in my prayers. *hugs
ReplyDeleteI'm sooo incredibly happy for you guys!!! Your son is living proof that NOBODY can tell you what will happen to your child except your child!!! Even with the odds stacked against him, he's doing amazing! Take him home and enjoy him!! The first few days will be stressful but soon it's going to be second nature checking for tube placement! Congratulations to you, your husband and daughter and a huge high five to the little man for making the doctors eat their words!
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