August 2, 2012
17 days old
Today was a good day! Ameir is up to 4 pounds 1 ounce. Today was pretty uneventful which is a relief after what he showed us he could do yesterday. Yesterday he was having some apnea where he would stop breathing for some time and turn an awful shade of blue. His nurse thought he was maybe having a seizure so the NP gave him some ativan. After the ativan he kinda got fidgety and started to have some twitching. So they had neurology come up and evaluate Ameir and do an EEG which showed no seizure activity but mild cerebral immaturity. The good news is after the ativan the apnea went away and after a feeding the twitching went away. He was put back on the CPAP, and next time we will try a much slower wean. Possible cause now we are thinking is low blood sugar and we will test that if the twitching happens again.
EEG in progress, poor kid...it looks worse than it was.
Done yesterday August 1, 2012.
Today since he was feeling better PT came in and wrapped Ameir's clubbed foot.
OT came in and splinted his hands.
Ameir even got his first tummy time today. He loved it and we let him sleep this way for about an hour.
Today we also got a visit from Maristella and her mom. Maristella also has Trisomy 18, and she is almost 3 years old. We got to meet back in April and her mom Raffaella gave us so much information before Ameir was born I just knew I made the right choice.
Here are a few more pics from the last couple of days.
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