2 Weeks Old

July 30, 2012

2 Weeks Old Today

We have had a lot of progress this week.  Today the doctors came in and said the "D" word.  It was kind of exciting.  ENT has signed off on Ameir's admission and said follow up in the office 1 month after discharge.  We are waiting on PT/OT for an evaluation today to see if Ameir will be able to drink out of a bottle.  Today we were going to try and take him off the nasal cannula but he had an ECHO that lasted an our and a half and when he was screaming through out it his oxygen was going down a little bit so we will try tomorrow. The radiologist told me that Ameir has 2 small VSD's that will close on their own but we have to see the cardiologist tomorrow so then can at least follow that they do close.  Since he is oxygenating good the plan is to just monitor clinically.  The plan right now is home early next week.  Fingers crossed that everything keeps going good for us.

Here is some ECHO pictures.

Ameir seen the PT today and she tried to tape his foot, but it kept turning a pretty shade of purple so she could not leave the tape on.

A couple pics from this afternoon.  He was awake a lot today :)

July 29, 2012

13 days old

Lots of visitors today.  Here are several pics.  Nothing really new since it is the weekend. Off the high flow nasal cannula and now just on the wall cannula.  With no added oxygen so it will be attempted to wean off this week sometime.